This blog will be a place to post poetry written by people living with Alzheimer's disease. We will focus on poetry that is created as part of the Alzheimer's Poetry Project. We will post information and news about dementia.
We hope this blog is of use to the family members who have a loved one with dementia.
Poetry for Life!
Do you know any kids or elders or cats or anyone really, stuck in the safety of their home? Please join poet Gary Glazner at 10:30am EDT each day, Monday through Friday, through April 10th
Call (339) 209-6482
Poetry for Life is a 15-minute long show that sounds like an old-fashioned radio show. Suitable for all ages! Funny Poems! Happy Poems! Poems that make you want to Dance. Love Poems! Silly Poems! Won’t you listen in and take a chance?
Contact poet Gary Glazner for more info at: garyglaznerpoet@gmail.com
Depending on the length of the PAUSE Quarantine and level of interest we may extend programing beyond the end date of April 10th.
On the way from life
to death,
I carry this luggage
with me,
it gets heavier
with each passing year,
even short moments
want to put something in it.
I have children’s tears
packed there,
sleepless nights interrupted by
silent sobbing,
I have all the loves
that have gone away somewhere,
a bear and a bull market,
knowing that it was hard.
This luggage
is memories,
added to life for free,
sometimes they are like
outstretched wings,
sometimes they resemble
a ball at our feet.
I’m going ahead,
the next episode of my life,
I carry this luggage with me
to feel the magic of memories
again.
This poem comes to us from Poland.
The poet is Norbert Góra,
a former care assistant.
One of the highlights of working on the APP is the people you get to work with. With all the dozens, if not hundreds of people, I have had the pleasure of working with, the only mother and daughter team we have had is Cari Griffo (to the far left in orange) and Willa Edwards (in the front in blue). Here they are with a group of poets in Albuquerque performing as a poetry chorus.
Also, pictured is Willa's dad and Cari's husband the artist Trent Edwards (to the far left). I know these long term friends not only through poetry and art, but Cari was also for many years my dental hygienist.
She has recently written and interesting essay on the connect between Gingivalis and Alzheimer's disease. The piece included a great story about Cari and Willa's time working with the APP.
JAMA: The Journal of the American Medical Association, a peer-reviewed medical journal published my article, on performing and creating poetry with people living with dementia. Co-author Dan Kaplan, PhD and I are thrilled! It is the most in-depth description of my theory of what is happening at the neurological level, when you are performing poetry using call and response.
The paper is a call for further research and ends with, “Reciting poetry is unlikely to change the progression of dementia, but it can help change the narrative of how unaffected individuals and society perceive dementia. Changing that narrative to include examples of creativity and moments of joy, and the tantalizing possibility that it can positively affect the consolidation of new short-term memories into long-term memories, alters the perception of dementia from an experience defined by isolation and lost personhood to one of social vitality and enduring personhood. This shift may help combat the stigma of memory loss and promote more humane and effective care environments and therapeutic strategies for working with these patients.
Creativity in Elder Care
Training Medical Students in the Use of Creative Expression to Improve Elder Care
"The poem springs from the half-spoken words of such patients as the physician sees from day to day… This, in the end, comes perhaps to be the occupation of the physician after a lifetime of careful listening." -William Carlos Williams
We are excited to announce that in July 2016, we launched the The Art and Medicine Program at the University Of Arizona College Of Medicine – Phoenix and the Alzheimer’s Poetry Project (APP), based in Brooklyn, New York, provided a series of participatory arts training workshops for medical students to use creativity with elder patients. We developed a medical student curriculum entitled, “Creativity in Elder Care,” for the Art in Medicine program. The program is now in its third year.
The workshops were co-taught by Gary Glazner, founder and Executive Director of the APP, and Cynthia A. Standley, PhD, professor in the Department of Bioethics and Medical Humanism at the University of Arizona College of Medicine – Phoenix.
Autumn in LA doesn’t make sense,
shouldn’t even be a song.
I wouldn’t even give it a second thought
It starts on Christmas day
You know what I mean. I’d be a fool to run there.
Autumn in Brooklyn, leaves falling. They do.
Autumn in Vermont, a slight mist,
tramping through the forest
Autumn in LA sounds like fun and laughter
A cacophony of horns on the 405
Doesn’t sound different than any other month
Smells like smog
The kids go off to school. And we’re free!
The leaves change colors in autumn
in New York, weather cooling down
We don’t have that here
But the coloring of my liquidambar trees
And there’s a fragrance to it. Autumn.
There’s a street that has a tunnel of trees
They all turn, it’s a very pretty street
Nobody can afford to live on it
but it’s a very pretty street
Autumn in New York makes sense.
Autumn in LA doesn’t make sense.
Created by poet Sarah Jacobus, with the poets at OPICA. Sarah writes about the process, "I chose an autumn theme for today, despite the fact that it’s over 90 degrees here. I gave each participant a little pumpkin to hold, feel, smell. We did call and response with the first verse of James Whitcomb Riley’s The Frost is on the Punkin and made some vigorous kyoucks and gobbles and clucks. A woman in the group started humming Turkey in the Straw, and we realized we could sing the poem to that tune. So we did. Then we listened to Sarah Vaughan’s arrangement of Autumn in New York and talked about songs as poems."
Jenkins gets the idea from an unnamed Alzheimer’s guide that suggests using poetry with people living with memory loss and the Longfellow poem that opens, “I shot an arrow into the air.” That is my story and the Alzheimer’s Poetry Project is the unnamed guide. Jenkins writes, “After she was forced to retire, reading to her became harder as the disease progressed. One afternoon I followed the advice in the Alzheimer’s guide and tried a short poem. I read about Longfellow’s arrow, streaking through the air and coming down he knew not where, ‘For who has sight so keen and strong that it can follow the flight of song.’”
Jenkins goes on to use Mary Karr’s amazing poem, “Loony Bin Basketball.” That I had any small part in these two friends connecting through poetry is an honor.
Much love to the family, friends and fans of Coach Summitt.
Nurses Day (By the Avalon Poets on 5/6/16 with past Poet Laureate of Madison, Fabu Carter)
I still am a nurse. Once a nurse, always a nurse.
I have such a pain in my neck. I need a nurse.
Nurses are kind; helping people recover from whatever is bothering them.
Nurses are very nice people to work with.
I love nurses.
Nurses are for us. They look after us.
I enjoyed teaching, but nursing is something else.
The noble profession of nurses.
I’m happy its National Nurses Month, week and day.
I’d like to be a nurse.
I always wanted to be a nurse and have someone call “Nurse, Nurse!”
One of the pleasures of running the Alzheimer's Poetry Project (APP)
is the people you meet.
Sarah Jacobus has been taking the the APP on-line training
and it is true delight to see how she is shaping the APP to her own voice and vision.
In addition, Jacobus has been certified in the storytelling project, "TimeSlips,"
and is taking an improv class!
The poems she has been creating with her groups in Los Angeles are full of strong images.
This is a photo Sarah took of a budding peach tree in her backyard.
She brought clipping from the tree to share with and inspire her group.
She asked a series of questions around the theme of trees
and the group's answers became the lines of the poem.
I can't wait to see what her and her poets come up with next.
It is an honor to share their poem with you.
I AM A TREE
(The poem “I Am a Tree,” inspired by the Joyce Kilmer poem “Trees,”
was created with Sarah Jacobus by the poets at OPICA,
a Los Angeles adult day program and counseling center for people with memory loss.)
I have a strong central bark
and branches with flowers at the end
I am mostly green
a little brown at the tips
but mostly green, that’s for sure
I am brown, solid and gray
with little touches of red and blue
Fragrance clean
I smell like sweet apple
I shade myself from being frightened
Refreshing, I smell the air in the neighborhood
It keeps me from thinking of bad things
Refreshing, and raring to go explore the area
maybe a deer, or a small squirrel there
a brook with stones that are smooth
smooth
They make a person feel real good about life.
We had an elm tree in the backyard
There was another tree like it
3,000 miles away in Connecticut
It had the same fragrance
I could jump back and forth between them
I sit at the top of a windy hill and feel
nostalgic about an old memory
I’m a tree that hides me from the world
and lets me think about
who I am
who I want to be
What a memory
Sarah Jacobus, LCSW, MFA, is a Los Angeles social worker with a Master of Fine Arts Degree in creative writing. She is committed to creative engagement for elders with memory loss as a tool for meaningful self-expression, community building and fun. Trained and certified by APP founder Gary Glazner, she is currently bringing the APP method to senior centers, care communities and individuals in Los Angeles County
Fabu Carter on Wisconsin Public Radio on the APP and how dementia effects the African American community. Fabu leads the APP in Wisconsin and works at the Wisconsin Alzheimer's Disease Research Center. Such an honor to get to work with her.
The Wisconsin Alzheimer's Disease Research Center is a unique program combining academic, clinical, and research expertise from the University of Wisconsin-Madison School of Medicine and Public Health and the Geriatric Research, Education, and Clinical Center (GRECC) of the William S. Middleton Memorial Veterans Hospital in Madison, Wisconsin.
For Our Elders With Memory Loss
by Fabu Carter
(From Dementia Arts: Celebrating Creative in Elder Care)
Some call you seniors
I call you wise elders
Living long and learning much.
You should be honored
Your grey hair a symbol
Of victory and authority in life.
When your memory flees or hides
And every face seem strange
Remember the other signs of love.
The gentle touch, the kind voice
The spirit that welcomes you
Just as you are.
Reassure yourselves
That you know how love feels
For it will chase the fear of forgetting
away.
Rhythm is essential in performing and creating poetry with people living with memory loss. We often chant the poems using, "call and response," to engage the group. In this case "call and response," is where the session leaders says a line of poetry and has the group echo or repeat the line.
The NPR piece below, "How Rhythm Carries A Poem, From Head To Heart," gives a wonderful description of the importance of rhythm in poetry. The poet Edward Hirsch says, "Spoken-word poetry brings back that ancient feeling of poetry as performance and poetry as contest; and poetry as spoken, chanted, sung."
My background as a performance poet and my involvement with the Poetry Slam informs and guides my work as the founder of the Alzheimer's Poetry Project (APP). I trace many of the techniques and methods of the APP to lessons I learned in how to engage the audience as a performance poet. That ancient sense of poetry as performance is at the core of the APP.
One of the reasons "call and response," works so well with people living with memory loss, is that it taps into what neurologists call, auditory sense or echoic memory. In the book "Nueroscience," temporal categories of memory are defined in three classes:
1. Immediate memory
2. Working memory
3. Long-term memory
The book states, "The capacity of immediate memory is very large, each sensory modality, (visual, auditory, tactile and so on) appears to have its own semi-independent "memory register." Accessing immediate memory through the auditory sensory modality, we are able to engage in the performance of poetry. We find a high degree of success in asking them to repeat back words they have just heard and the rhythm along with rhyme help to facilitate the recitation.
Here is a joyful and playful example of "call and response," using lines from the EE Cumming poem, "I Carry Your Heart."
I recently visited the Picasso Sculpture exhibit at MoMA, that the NY Times calls “a once-in-a-lifetime exhibition that brings together more than 100 Picasso works, including many never seen in the United States."
Seeing the way he used found objects to create a number of the sculptures, made me think that how we create poems in the Alzheimer's Poetry Project (APP) could be described as "Found Poetry."
Wikipedia defines, "Found poetry as a type of poetry created by taking words, phrases, and sometimes whole passages from other sources and reframing them as poetry (a literary equivalent of a collage) by making changes in spacing and lines, or by adding or deleting text, thus imparting new meaning."
The main technique we use with APP to create poems is by asking open-ended questions around a theme. For example at the John Michael Kohler Art Center in Wisconsin with a group from the Gathering Place, we created the poem "Ocean." The poem was inspired by Tristin Lowe's artwork of a life-sized whale, "Mocha Dick." We asked what the ocean would smell, taste, look, sound, and feel like. We imagined encounters with whales. We wrote down all the comments from the group, taking care to transcribe as close to the actual words as possible and then we shaped that text into a poem.
We started the session by performing: "Catch a Little Rhyme," by Eve Merriam; "Whopper!" by Jack Prelutsky; "The Whale," by Hilaire Belloc and sections of "The World below the Brine," by Walt Whitman; and "Moby Dick," by Herman Melville. These poems also helped to inspire our original poem.
When we perform the newly created poem with it's "found" text we use a "call and response," technique to perform the poem with the group and improvise, thinking of the lines in a similar way to how jazz musicians interpret a melody, changing among other elements, the tone, rhythm, and speed of the recitation. We are always being open to the group adding new lines, as you see at the end of the poem, with the improvisation on whale, pail and ale.
Another artist we draw inspiration from is Robert Rauschenberg’s work with Combines. This mixing of media and breaking down of boundaries between painting and sculpture also guides our work in partnering with assisted living, adult day care, senior centers and cultural organizations including museums, to provide programming for their clients, we have a group of ready, willing and able people who respond strongly to the opportunity to express their creativity, with the goal of giving voice to people living with memory loss.
Special thanks to Margaret Groff, Education Program Manager at JMKAC and Cindy Musial, past Director at The Gathering Place for setting up the workshop.
This event was made possible by Bader Philanthropies’ funding, formerly the Helen Bader Foundation and a leader in the fight against Alzheimer’s disease throughout Wisconsin. Big thanks to all the students at Altoona High School and their wonderful teacher Angela Roloson. Thanks also to Ella Shaw teacher extraordinaire, who organized the events and to her students at Durand High School.
Minds like locked boxes
Presented in the round
I used language like keys
And love is what I found
Love for the now and for history
And the love was unlocked
With the key of poetry
- Jalen Bell
So excited with get to work with talented Jalen Bell, the 2014 Poetry Out Loud, Arkansas State Champion and his family! He wrote that wonderful poem after our poetry session on Tuesday performing and creating poems with the people at Innisfree Senior Living Community in Rogers.
His younger sister Jaden also participated in the session as did his father Donovan. Jaden is preparing to take part in the National Spelling Bee. When I asked about her favorite word to spell, she said Pfeffernuesse, the German Christmas cookie. As soon as she replied one of the men in the group jumped up, went to his room and brought back a Pfeffernuesse! It was delicious!
Yes we also read the patron poem of the home, "The Lake Isle of Innisfree." The event was hosted by the Arkansas Arts Council. Big thanks to Cynthia Haas the Arts in Education Program Manager.
Poetry for Life is a pilot project to bring students who are participating in Poetry Out Loud to assisted living, adult day care and senior centers to perform and create poems with the elders.
The National Endowment for the Arts and the National Institutes of Health and others are pushing for more answers. At Birmingham Green, researchers from George Mason University are conducting a federally subsidized study to examine the impact of the arts on the emotional and cognitive health of older adults.
“There still needs to be a lot of work done,” said Sunil Iyengar, who heads the Office of Research and Analysis at the NEA. Iyengar said research into the effect of art on people with cognitive impairments has suffered from a lack of rigor.
Too many studies lacked proper controls, involved samples that were too small, and were poorly defined. They also may have been looking for the wrong thing, Iyengar said. While searching for hard evidence of biological improvements in memory or cognition, many also overlooked measurable improvements in the mood and well-being of people with Alzheimer’s, and their caregivers, too.
I am thrilled to be included in the article:
“But outside of these things is sheer joy,” said Gary Glazner, founder and executive director of the Alzheimer’s Poetry Project. Glazner said he was working at an adult day-care center in Northern California and searching for ways to connect with people with Alzheimer’s disease when he discovered the power of poetry to reach people with cognitive impairment.
Having studied poetry in college, Glazner shared Henry Wadsworth Longfellow’s poem “The Arrow and The Song” with a resident and from the first line — “I shot an arrow” — hit the mark. Glazner uses poetry, particularly beloved classics learned by older adults, in call-and-response with older people and guides them in writing poems. Jump-rope rhymes, even military cadences, can evoke responses from people with cognitive impairment that engage them, he said.
Wednesday, December 10th, 6pm
New York Memory Center
199 14th Street, (At 4th Ave.)
Take the R to Prospect Avenue
This special holiday season Memory Arts Café will highlight
the artists of the New York Memory Center. Meet new friends and greet
old ones as we ring in the holidays with laughter, toasts and cheer.
Poet-in-Residence Gary Glazner will host the evenings entertainment.
Adam Kampe, Media Producer at National Endowment for the Arts has produced an excellent audio piece on the APP.
He interviews Professor Kate de Medeiros of the University of Miami-Ohio on using poetry with people living with memory loss.
To listen to the piece click here:
NEA Audio Piece on the APP
Thrilled to be interviewed on by Melanie Tait on Australian Broadcasting Corporation radio! Click here to hear the broadcast
Brought back all the wonderful poems from last year's visit to give a workshop at the Arts and Health Australia conference including
"I love a sunburnt country," by Dorothea Mackellar. The photo is from a group I worked with at an assisted living center in Sydney. More info on the 2014 International Arts and Health Conference click here. Big shout out to Margret Meagher the conference organizer and founding executive director of Arts and Health Australia for bringing me out last year. Oh give me a home among the gum trees with lots of plum trees, a sheep or two and a kangaroo. My Country
by Dorothea Mackellar (1885 - 1968)
The love of field and coppice,
Of green and shaded lanes.
Of ordered woods and gardens
Is running in your veins,
Strong love of grey-blue distance
Brown streams and soft dim skies
I know but cannot share it,
My love is otherwise.
I love a sunburnt country,
A land of sweeping plains,
Of ragged mountain ranges,
Of droughts and flooding rains.
I love her far horizons,
I love her jewel-sea,
Her beauty and her terror -
The wide brown land for me!
A stark white ring-barked forest
All tragic to the moon,
The sapphire-misted mountains,
The hot gold hush of noon.
Green tangle of the brushes,
Where lithe lianas coil,
And orchids deck the tree-tops
And ferns the warm dark soil.
Core of my heart, my country!
Her pitiless blue sky,
When sick at heart, around us,
We see the cattle die-
But then the grey clouds gather,
And we can bless again
The drumming of an army,
The steady, soaking rain.
Core of my heart, my country!
Land of the Rainbow Gold,
For flood and fire and famine,
She pays us back threefold-
Over the thirsty paddocks,
Watch, after many days,
The filmy veil of greenness
That thickens as we gaze.
An opal-hearted country,
A wilful, lavish land-
All you who have not loved her,
You will not understand-
Though earth holds many splendours,
Wherever I may die,
I know to what brown country
My homing thoughts will fly.
The New Mexico History Museum joins the Alzheimer’s Poetry Project to share techniques for reaching people with memory illnesses through literature, performance and visual art and museum exhibits on Saturday, October 25, 9am to 4pm, New Mexico History Museum, 113 Lincoln Avenue Santa Fe, NM 87501. Registration fee of $35 includes light breakfast and lunch. Continuing Education Units will be available.
To register or for more information call 505-577-2250 or go to: www.dementiaarts.com
Workshops will be led by: Gary Glazner, Alzheimer’s Poetry Project; Alysha Shaw, Lifesongs℠; Jane Tygesson, Discover Your Story; Ruth Dennis, Vista Living; and Jytte Lokvig, Alzheimer’s Café. Poet Stuart Hall will be the featured guest artist.
Partnering Organizations: Alzheimer’s Association, New Mexico Chapter; Alzheimer’s Café; Alzheimer’s Poetry Project; Discover Your Story, IAIA MFA Creative Writing Program; Institute of Dementia Education & Art; Life Songs; New Mexico Literary Arts; Southwestern College, and Vista Living Communities. The conference is in support the New Mexico Alzheimer’s and Related Dementia State Plan, with the endorsement of: the officeof Governor Susana Martinez New Mexico Aging and Long-Term Services Department and the New Mexico Department of Cultural Affairs.
Partially funded by the City of Santa Fe Arts Commission; Santa Fe Community Foundation; McCune Foundation; National Endownent for the Arts; New Mexico Arts and the Poetry Foundation.
New York Memory Center, Alzheimer’s Poetry Project and the
Brooklyn Public Library Present:
A Celebration of Creativity
A Memory Arts Café event, featuring singer Hannah Reimann
Saturday, June 28th, 10:30 am to 12:30pm,
Brooklyn Public Library
Dweck Center
10 Grand Army Plaza, Brooklyn.
For info: call (718) 499-7701 or visit alzpoetry.com
Memory Arts Café is series of free art events for people living with Alzheimer’s disease, their caregivers and the general public and is co-produced by New York Memory Center and the Alzheimer’s Poetry Project. The series includes light refreshments and the opportunity to chat with the guest artists.
The Celebration of Creativity with feature guest artist, singer and actor Hannah Reimann and be hosted by poet Gary Glazner. The highlight of the day will be the artists leading the audience, in the creation and performance of an exciting new work combining music and poetry.
Hannah Reimann has performed at Lincoln Center, the Grand Canyon Music Festival, and mostly recently performing the music of Joni Mitchell at the Cutting Room. Jim Brenholts for All Music writes, “Hannah’s range allows her to sing love songs, simple ballads, melancholy blues, and torch songs with equal gusto. Her lyrics are complex and simple; they are heartfelt and liberating.” She has collaborated with violist Paul Coletti performing the music of Argentine Astor Piazzolla. As a film actor, Reimann has appeared in over 20 independent films including the award-winning "The Wounded & the Slain" and “Things I Don’t Understand.” Her original music has been featured on CNN.
The event is co-produced by New York Memory Center, Alzheimer’s Poetry Project, and the Brooklyn Public Library.
Sparking Memories: The Alzheimer's Poetry Project Anthology
The anthology has 75 of the poems we use in the project. Essays on how to use poetry to connect with people living with dementia, on why care giving matters, and on the medical implications of using poetry. More info at:http://www.alzpoetry.com
Nútreme Hoy (Nurture me today)
Our new Spanish language anthology contains: essays on how to use poetry to connect to people living with dementia, and how to create a poetry program, as well as poems and Dichos. More info at http://www.alzpoetry.com