This blog will be a place to post poetry written by people living with Alzheimer's disease. We will focus on poetry that is created as part of the Alzheimer's Poetry Project. We will post information and news about dementia. We hope this blog is of use to the family members who have a loved one with dementia.

Showing posts with label Alzheimer's Poetry. Show all posts
Showing posts with label Alzheimer's Poetry. Show all posts

Monday, January 9, 2017

AUTUMN IN LA


AUTUMN IN LA

Autumn in LA doesn’t make sense,
shouldn’t even be a song.
I wouldn’t even give it a second thought
It starts on Christmas day
You know what I mean. I’d be a fool to run there.
Autumn in Brooklyn, leaves falling. They do.
Autumn in Vermont, a slight mist,
tramping through the forest
Autumn in LA sounds like fun and laughter
A cacophony of horns on the 405
Doesn’t sound different than any other month
Smells like smog The kids go off to school. And we’re free!
The leaves change colors in autumn
in New York, weather cooling down
We don’t have that here
But the coloring of my liquidambar trees
And there’s a fragrance to it. Autumn.
There’s a street that has a tunnel of trees
They all turn, it’s a very pretty street
Nobody can afford to live on it
but it’s a very pretty street

Autumn in New York makes sense.
Autumn in LA doesn’t make sense.

Created by poet Sarah Jacobus, with the poets at OPICA. Sarah writes about the process, "I chose an autumn theme for today, despite the fact that it’s over 90 degrees here. I gave each participant a little pumpkin to hold, feel, smell. We did call and response with the first verse of James Whitcomb Riley’s The Frost is on the Punkin and made some vigorous kyoucks and gobbles and clucks. A woman in the group started humming Turkey in the Straw, and we realized we could sing the poem to that tune. So we did. Then we listened to Sarah Vaughan’s arrangement of Autumn in New York and talked about songs as poems."

Wednesday, July 6, 2016

RIP Pat Summitt


She was the winningest coach in basketball history. A few years ago she was diagnosed with early onset Alzheimer’s disease. Here is a story by her good friend and writer Sally Jenkins on using poetry with Pat.

Jenkins gets the idea from an unnamed Alzheimer’s guide that suggests using poetry with people living with memory loss and the Longfellow poem that opens, “I shot an arrow into the air.” That is my story and the Alzheimer’s Poetry Project is the unnamed guide. Jenkins writes, “After she was forced to retire, reading to her became harder as the disease progressed. One afternoon I followed the advice in the Alzheimer’s guide and tried a short poem. I read about Longfellow’s arrow, streaking through the air and coming down he knew not where, ‘For who has sight so keen and strong that it can follow the flight of song.’”

Jenkins goes on to use Mary Karr’s amazing poem, “Loony Bin Basketball.” That I had any small part in these two friends connecting through poetry is an honor.

Much love to the family, friends and fans of Coach Summitt.

Monday, February 17, 2014

Poetry by Miriam Green


Questions my Mother Asked, Answers my Father Gave Her
by Miriam Green

Where were you last night?
I was here, with you, though you thought I was your father.
Where were you last night?
Out dancing with my lover who never forgets my name.

Where are the children?
They are grown with children of their own. They live in their own homes.
Where are the children?
They are waiting in the silken sky for your goodnight kisses.

Do you want a cup of tea?
Not now. I’m busy. You made some an hour ago.
Do you want a cup of tea?
I want many things. I want to stand with you under the canopy and never look forward.

How many children did I give birth to?
You cradled them both in your arms, raised them to adulthood.
How many children did I give birth to?
Daughter earth is calling. Go gently to her.

Where are my keys?
I told you. Check the back pocket of your bag.
Where are my keys?
We are locked inside this room together.

Is it time yet?
We have plenty of time.
Is it time yet?
Yes, it is time.

after Mark Strand

“Questions” recently won the 2013 Reuben Rose Poetry Prize. It appears on Miriam’s website
and in her as yet unpublished cookbook, The Lost Kitchen: An Alzheimer’s Memoir and Cookbook.

Saturday, August 31, 2013

Poetry in the Park


PBS NewsHour filmed today's Memory Arts Cafe. Jeffery Brown interviews Bernie in Prospect Park. We had a picnic, jammed with a sax player, recited poems by Whitman and Dickinson and created a poem about the park, a perfect day.

Natasha Trethewey, U.S. Poet Laureate recited Lucille Clifton's poem:
why some people be mad at me sometimes
they ask me to remember
but they want me to remember
their memories
and i keep on remembering
mine.

The group loved the poem and Natasha performed it with them using the "call and response," technique.
One woman called out the last line before Natasha recited it, saying, "That's just how I feel."
It was a lovely moment.

I will post a link when the piece airs. Probably in mid-September.
The Memory Arts Cafe is co-produced with New York Memory Center.
Christopher Nadeau, Executive Director of the New York Memory Center surprised us all
with a beautiful poem he had written on love.
Special thanks to Josephine Brown and her hard work on the event.

Tuesday, July 2, 2013

APPLETON POETRY PARTY

APPLETON POETRY PARTY

Residents and staff who have participated in the three-month long Appleton Poetry Project invite the public to join them in the culminating celebration of their poetry-making.

The celebration will take place on July 23 from 10:00-11:00 a.m. in Ogilvie Hall at the Thompson Community Center. Refreshments will be served. For more information, go to www.alzpoetry.com or contact Gary Glazner at: gary@alzpoetry.com.

Participants in the Appleton Poetry Project live and work at Brewster Village, Appleton Health Care Center, Fox River Nursing and Rehabilitation Center, Valley VNA Senior Services, and Bridgewood Nursing and Rehabilitation Center.

Residents and staff will present well-loved classic poems and originally created works. As a highlight of the event, New York poet, Gary Glazner, the internationally acclaimed founder and director of the Alzheimer Poetry Project, will lead the audience in the creation of a new poem.

This will be a high energy, fun event with lots of audience participation. It will highlight the creativity of people living with memory loss in long-term care.

All are welcome to come and experience this exciting form of creative engagement for people with dementia. This event is sponsored by the Helen Bader Foundation, the Poetry Foundation, the Alzheimer’s Poetry Project, and the Fox Valley Memory Project.

Tuesday, June 4, 2013

Ode To My Fathers Dementia


This a powerful poem and statement from Antrobus. His outlook on his father's dementia is articulate and moving. The last line is a battle cry for caregivers. Please give it a look and listen.

Raymond Antrobus is a spoken word poet and photographer, born and bred in Hackney. He is co-curator of Chill Pill/Keats House Forum and has performed along side authors and poets such as Margret Atwood, Michael Horovitz, Lemm Sissay, Benjamin Zephaniah & Kwame Dawes. Raymond appeared on series 5 of BBC Radio 4’s Bespoken Word.

Follow him on twitter - @RaymondAntrobus - His book Shapes & Disfigurements is out now on Burning Eye books - http://burningeyebooks.wordpress.com/...

More info on Antrobus at:
http://raymondantrobus.blogspot.com/

Thursday, March 28, 2013

John Fons' Writing


A while back we featured the poetry of Jon Fons. He had participated in Alzheimer's Poetry Day at the Overture Center in Madison, Wisconsin. Fons has recently launched a wonderful website featuring his writing. Click here to link to his website:

Here is another of Fons' poems:

Pressed Flowers

You are the
Bloom of
Yesterday.

Your colors
And scent
Evaporated,
Your stem
Grown brittle.

Yet every
Flower holds
The memory of
Its passion.

Every petal
Tells a beauty
Beyond fashion.

Tuesday, March 26, 2013

APP on the Radio

Click here to listen to the show: Alzheimers Speaks Radio, Blog Talk Radio

Performing a poem at the Memory Arts Cafe.

With Gary Glazner and project artists Zoe Bird; Fabu Carter; Rachel Moritz and Michelle Otero.

Tuesday, January 29, 2013

Kids Who Give


Max Wallack the teenage poet whose poem was featured in Dementia Arts on Capitol Hill has been awarded $1000 from KidsWhoGive.com. Max is giving the money to Alzheimer’s research. Please help him win an additional $10,000 by voting for him at Kids Who Give at:  
http://kidswhogive.com/vote-on-entries/

Here is his poem from Dementia Arts on Capitol Hill:

Dementia
It gallops in silently on powerful hoofs
Snatching sweet, precious, forgotten memories
Turning true-blue loyal friends into treacherous strangers
Clogging synapses with emptiness
Crumbling trust into excruciating paranoia
With bleak darkness comes the anxious wakefulness of broad daylight
And bitter terror encompasses every living fiber
"If I sleep, where will I be when I wake up?"
The compulsion to run, the paralysis of fear
Mature, child-like dependence
Retracing youthful development, but in rapid reverse
Cureless medicines, meaningless conversations
Leading up to the inevitable

This poem was first published at Mind Set Poetry. The site is hosted by the Alzheimer's Association
Massachusetts/New Hampshire Chapter. Read the poems and learn more at
: http://mindsetpoetry.org/

Max is also the founder of Puzzles-To-Remember. You may reading about the project on at: https://www.facebook.com/pages/Puzzles-To-Remember/106150529406566?group_id=0

Thursday, January 10, 2013

What Does It Mean To Be A Doctor?

What Does It Mean To Be A Doctor?
-Dr. Peter Reimann

What it means to be a doctor
is a number of things.
People come to you
and want advice about their health
and they complain about what they consider
is missing from their health
Or they don’t.
They say, “What the hell do you think is wrong with me?
Lass mich allein, I’m fine
und du bist fur mich ein Borstenschwein!”*

What advice would I give a young doctor?
First I’d ask, “Why do you want to be a doctor?
Is it that you want to make money?
What for?
Or is it that you want to help other people?
What for?”

You ask me what was my reason to be a doctor.
I think my question was something of natural history.
Why are there people who need help?
Very complex, of course.
Do they need help because
of the hostile environment
or their internal hostility
or blah, blah, blah

What was the best thing about being a doctor?
…okay, one more question: $10-
Another complex  question.
It’s a job in which you keep your hands clean
You don’t get literally dirty
or it’s a job in which you make people feel a little better
or you make them feel really bad
Is that good?
Could be good-
Could be really bad…
and so on
and so on

*translation:  “Leave me alone, I’m fine
and you are for me a pig with many stiff hairs in his snout!”

(This poem was composed with Dr. Peter Reimann and his daughter Hannah in Springfield, New Jersey on Jan. 4th, 2013. Dr. Reimann is very playful with making up rhymes and jokes that his name means "rhyming man." He know many German poems by heart and recited and translated a few for us on the spot. We created the poem by asking questions around being a doctor. Hannah wrote down the answers to create the lines of the poem and translated the German lines. She is working on a film about her father and we will post links to it soon.)

Friday, November 16, 2012

Jim on Dementia Arts


Jim describes participating in the Memory Arts Cafe performance at IONA Senior Services on Thursday, Sept. 20th in Washington DC. The event was part of the Dementia Arts Festival and featured musician Judith-Kate Friedman, Songwriting Works, dancer Maria Genne, Kairos Alive! and poet Gary Glazner More info at dementiaarts.com

Tuesday, September 25, 2012

Memory Arts Café

New York Memory Center & Alzheimer’s Poetry Project Present
Memory Arts Café

Brooklyn, NY – September 12, 2012 – Memory Arts Café is a new series of free art events for people living with Alzheimer’s disease, their caregivers and the general public and is co-produced by New York Memory Center and the Alzheimer’s Poetry Project. 

The series, which takes place on the 2nd Wednesday of each month, includes light refreshments and the opportunity to chat with the guest artists.

This Memory Arts Café event features Jesse Neuman, musician and Founder and Director of MusicWorks NYC. Poet Gary Glazner will host the event. 

Wednesday, October 10th, at 6 pm
New York Memory Center
199 14th Street at 4th Avenue 
Brooklyn, NY 11215
(Take the R to Prospect Ave.)
For info: call (718) 499-7701

Tuesday, August 28, 2012

Dementia Arts Festival


National Center for Creative Aging & Alzheimer’s Poetry Project Present Dementia Arts Festival

We are thrilled to announce a series of performances focused on bringing attention to the expanding opportunities the arts bring to people with Alzheimer’s. The events take place at Washington DC assisted living and adult day care centers in support of the National Alzheimer’s Plan Act. For a full festival schedule please see dementiaarts.com.

Memory Arts Café Performance Thursday, September 20th, 6 to 8pm Iona Senior Services, 4125 Albemarle Street, Washington, DC 20016.

You are invited to a performance for people living with Alzheimer’s disease, their caregivers and the general public. New Mexico poet Stuart Hall reads work documenting his experience in living with dementia. Maria Genne, Kairos Dance and Judith-Kate Friedman, Songwriting Works and Gary Glazner, Alzheimer’s Poetry Project will lead the audience in the creation of a new performance. The event includes light refreshments and the opportunity to chat with the guest artists. We are excited to show an excerpt from Anne Bastings’ film “Penelope Project,” which documents the performance of using the Penelope story from Homer’s Odyssey to engage an entire long-term care community in the creative process and Songwriting Works’ new music video, “WWII Homecoming Song.”

Sponsored by the Alzheimer’s Association Washington DC Chapter, Center for Aging Heath and Humanities, Generations United, Iona Senior Services, and the Society Arts and Healthcare with support from the Alzheimer’s Foundation of America, the Helen Bader Foundation, the MetLife Foundation and the Pabst Charitable Foundation for the Arts.

Tuesday, January 4, 2011

IV


Our father died peaceful at home, with my brother Lon holding his hand, as dad took his last breath. On Christmas Eve we brought him to Kaiser hospital in Terra Linda and we spend the next three days at his bedside before they allowed us to take him home to die. The poem, “IV,” takes place during those days.

In going through our father’s papers I found a note he had written about growing up in Oklahoma.

“My earliest memories are of our farm in Blair. We lived in a two-room house. The ‘bathroom’ consisted of a one-hole out-house, and for Saturday nights, a large washtub. There were no kids living close by so I mostly played alone. My game of choice was pretending the tumbleweeds were cattle and I would chase them on a stick horse and rope them with a heavy cord. I would then drag them back to the barn and put them in the corral. With the Oklahoma wind always blowing this quite a job.”

IV
The morphine on your breath
Could make a grown man dizzy.

His hands on my shoulders,
he helps to lift himself up.
IV stand, maypole ribbons
of tube and power cord.
We step, step, stop,
step, step, steady,
our way to the toilet,
rolling the stand after us.
He can sit up on his own,
I give him a moment.
Snap on surgical gloves,
gently clean him.
Reverse our papa waltz,
lay him down to rest.

Trying to look busy,
listening for his death.

Friday, December 31, 2010

Maps and Wings


Our father died yesterday at 2am. His obituary is below. On Christmas day when he was in the hospital I asked him if he wanted me to read him a poem and he asked for the one about "Okies."

I read it to him and he grinned and said "pretty good." Below is Maps and Wings written for my father. I will be writing more about him and his and my mother's connection to the Alzheimer's Poetry Project over the next few days. Gary Mex Glazner

Maps and Wings

The road looks the same
no matter where you are going.

Route 66 was my father’s road
and his father’s road.

Model A with the dust bowl
in the rear view mirror
and California in the headlights.

From being men to being Okies.
The vulgarities of newcomers.
A drowsy distant hope.

Route 66 was their plowshare.
They dug into the rank soil.
Held the miles in rusted fingers.

Maps folded like wings.
A banquet of motion.
Beckoning us now
with its broken fragments.

Let us piece the road together.
This is the way they went
and we shall follow them as we are able.

Billy Mex Glazner was born in Blair, Oklahoma on July 31st, 1930. His childhood sweetheart and wife of 47 years, Frankie Lou Glazner preceded him in death.

As a boy he worked picking cotton and experienced the Great Depression and the Dust Bowl. Like the characters described in John Steinbeck’s novel, “The Grapes of Wrath,” his family traveled from Oklahoma to California in search of work, where his father Mex found employment as an electrician on the Irvine Ranch. Billy’s middle name comes from the state of New Mexico where his grandfather worked on the railroad near Santa Fe. He was so enchanted by the land; he named his son after the state, who then passed it to his son and on to me as a family name. 

Everyone who knew Billy Mex remarked on his sense of humor and storytelling ability. Perhaps those talents had their origins in the fact his parents not only showed creativity with their unusual choice of a middle name, but in the fact that the given name on his birth certificate is Billy, not William.

He served in the Korean War as an artillery gunner. In 1957, he joined the U.S. Border Patrol in Sierra Blanca, Texas. He was promoted and transferred to work as an investigator in the Immigration and Naturalization Service (INS) in New York City in 1960. His 23-year career in law enforcement culminated in San Francisco as the Assistant Deputy Director, Investigations, INS in 1980. 

Upon his retirement in 1980 from the INS, he supported his wife in the purchase of Novato Florist and they worked together until their retirement in 1991. It takes a man secure in his masculinity to go from carrying a snub-nose, 38-caliber pistol in a shoulder holster and supervising INS agents to running a flower shop.

Recently he developed a passion for bowling and belonged to the Sons in Retirement Bowling League. 
His 1948, Blair Broncos high school yearbook lists his favorite food as: corn bread, molasses, and sassafras tea; his subject as Frankie; his song as “Cigarettes, Whiskey, and Wild, Wild, Women,” and his pastime as sleeping. His sister Ann reported that their mother Minnie was scandalized upon hearing these favorites
read aloud at his high school graduation and said, "He never drank sassafras tea."

He succumbed to cancer of the liver on December 30th, 2001. Billy Mex is survived by: his wife Ann; sisters, Sue and Ann; sons, Gary Mex, Kevin and Lon; their wives Margaret, Alma, and Jennifer, and grandchildren Jennifer, Emily, Frank, Beckett and Ruby. A memorial service will be held at the Presbyterian Chapel, 710 Wilson Ave. Novato, California, Sunday Jan 2nd, 2011 at 2pm.

Thursday, November 11, 2010

Translating Edwin Honig: A Poet’s Alzheimer’s


Union Docs has a wonderful piece on Alan Berliner's film "Translating Edwin Honig: A Poet’s Alzheimer’s." Great clips from the film and insight into the filmmaker and his relationship to his cousin, friend and former mentor — the poet, translator, critic, and teacher, Edwin Honig.

Check it out at http://www.uniondocs.org/translating-alan-berliner/

One of the most poignant scenes from the film is when Alan asks Edwin what the “one thing” he would say to millions of people watching him in a film, “Remember how to forget.” is Edwin's answer.

Honig was an early translator of Lorca and Pessoa.

You may read some of Honig's poems at Jacket Magazine

Here are the opening lines from "To Infinite Eternity"

Death is closer
to infinite eternity
than life is

and each life closer
to each least breath
than the blankness of
infinite eternity itself

More on Honig's work at the Poetry Foundation website.

Wednesday, October 27, 2010

Frances Kakugawa


Great article on Frances Kakugawa's book, "Breaking the Silence: A Caregiver’s Voice," by R. K. Singh on his blog at:

http://rksinghpoet.blogspot.com/2010/09/breaking-silence-tribute-to-sufferers.html

Singh writes, "...Kakugawa and her poet-colleagues’ varied experiences with a broad human perspective, engaging both mind and heart. The caregivers seek to share their compassionate spirit with a sense of gratitude to all those who help the victims of Alzheimer’s disease negotiate their mentally vacant existence."

More on Kakugawa, the book and her work here: http://www.francesk.org/homepage.html#top

Friday, May 28, 2010

Lion's Face New Opera by Elena Langer and Glyn Maxwell


Photo Credit: Alastair Muir

The Guardian has a wonderful account by poet Glyn Maxwell on: "How do you write an opera about dementia?"

He writes, "The more I learned, the better the poems became. The Institute of Psychiatry in south London's Denmark Hill opened its doors to Elena and me. We talked to scientists and researchers, saw x-rays and brain scans. We met care-givers, psychologists, music and drama therapists. We saw good care homes where we'd still never want to go, and poor care homes that we tried not to think too much about."



Click here for the full article- www.guardian.co.uk

Here is the website for Lion's Face

Friday, May 21, 2010

More on Lee Chan-dong's film, "Poetry."


UPDATE- LEE CHANG-DONG'S POETRY WINS THE CANNES AWARD FOR BEST SCREENPLAY!

Here is a clip from Maggie Lee's review of the film in the Hollywood Reporter,

"Bottom Line: A disturbingly ambivalent view on art's relation to life and death.

CANNES -- Rhyming couplets, rather than religion, is the opium of an old lady beset by Alzheimer's and a family crisis in Lee Chan-dong's companion piece to "Secret Sunshine." While both films feature maternal figures whose lives are derailed by tragedies they cannot help, "Poetry's" tone and emotions are so painfully muted, its style so elliptical and Lee's exploration of the function of art in a morally vacuous society so ambivalent that it makes for extremely difficult and challenging viewing."

read the full review here http://www.hollywoodreporter.com/hr/film-reviews/poetry-film-review-1004092975.story

Poetry is now being touted as a possible winner of the Golden Palm award!
Michael Phillips of the Chicago Tribune calls the film one of his favorites and says, "The South Korean writer-director's protagonist is exceptionally rich: a 60ish grandmother coping with financial difficulties and the early stages of Alzheimer's."

More reviews on the film: Financial Times

Chicago Tribune

Huffington Poet

ABC News

Sunday, May 9, 2010

Alzheimer's Poetry Project in Philadelphia


Held our third training session in Philadelphia last week and one of the poets Sojourner Ahebee, wrote about the experience in her blog.

"Participating in the Alzheimer's Poetry Project allowed me to discover another way of encouraging my grandmother, who has Alzheimer's, to be creative. She loves this very long poem by Langston Hughes called The Negro Mother. I am so impressed by how much of it she has remembered and she beams when she recites it."

Here is a link to the full post-

http://trumpetworld.blogspot.com/

It was great working the Philadelphia poets including her mother!
Happy Mother's Day!